We went for our test at St. Jude's yesterday. It was not a day scheduled for factor, so they drew blood from his port and sent us home. However the port site continued to bleed for the next 24 hours. Not pouring blood, just oozing, but still bleeding! Next time I will ask for the test to be done on infusion days, or we will infuse an extra time.
Anyhoo the results are back and they are GREAT! His inhibitor level was 0.45!!! That's a really good number. If it is below 0.6 again next month, then we're close to being considered in remission from the inhibitor! Yea!
Thanks so much for your continued prayers for Ian! Last night we were priviliged to hear a presentation on Christ in the Passover. It was illuminating. Ian and all of us wish you a very happy Easter from our family to yours. He is risen!