Okay Okay--I give up on trying to catch up this blog with a lot of details. I will just let you know that Ian has had regular bumps and bruises as he grows and gets more mobile. At 5 months he developed an unrelated condition which required a circumcision. YIkes!

We had the circ in the hospital. For most people its an outpatient procedure, but for us it was an 11 day hospital stay. At about 1 year old we had a port placed in his chest. This eliminated having to dig in his arms, legs, hands, and head for veins. His medicine has to be infused, (into a vein), not injected, (into the skin). With a port we can numb the port site and draw blood for labs or give meds with out the trauma of finding and maintaing IV sites. Plus they taught Dad and me how to give the meds as well. It makes things a lot less painful on him and us.

At this time we also learned that Ian had developed an inhibitor. That means that his body sees the factor 8 medicine as a foriegn invader and has developed an antibody against it, rendering the factor 8 meds useless. Untill the inhibitor can be eliminated, he will be treated for bleeds with activated factor 7 which forms temporary one-time clots.

On Halloween Eve (:)) he cut his finger on a dropped teacup. Thankfully, that healed up pretty well with sticky "stitches" and factor 7.

On New Year's Day Ian came down our hall and fell right into the edge of the door. His forehead had a pool of blood or bruise from a pump the week before. He hit his head, nose,and chin. Because his head had the bruise it reacted like a water balloon (instead of an air balloon) when it hit the door and split open with about a 2" gash.
We rushed to the er and he had 5 stitches. We gave him factor 7 every 3 hours, but on Sunday the 4th we were back there because of continued bleeding. They did a ct scan-to check for internal bleeding and we did more factor 7. He seemed to do better after that bleeding some, but not constantly. He finally stoppedon the 19th. It took 2 trips to get all the stitches out but by the end of the month he looked like himself and was pretty much headed.

That catches you up until today Feb. 2-- Ian goes to St Jude's today at 2 for an inhibitor test and other chech up things with his hemotologist. Please pray that his inhibitor therapy is working and that the anitbody is decreasing.