We went for our test at St. Jude's yesterday. It was not a day scheduled for factor, so they drew blood from his port and sent us home. However the port site continued to bleed for the next 24 hours. Not pouring blood, just oozing, but still bleeding! Next time I will ask for the test to be done on infusion days, or we will infuse an extra time.
Anyhoo the results are back and they are GREAT! His inhibitor level was 0.45!!! That's a really good number. If it is below 0.6 again next month, then we're close to being considered in remission from the inhibitor! Yea!
Thanks so much for your continued prayers for Ian! Last night we were priviliged to hear a presentation on Christ in the Passover. It was illuminating. Ian and all of us wish you a very happy Easter from our family to yours. He is risen!

We've had another great month! By great I mean emergency free :). Thanks so much for your prayers for his health and safety. Tomorrow is our appointment at St Jude's for Ian' s check up and inhibitor test. Hopefully, it will continue to decline. It has gone down for three months in a row and we are cautiously optomistic that it will continue.

Some recent pictures of Ian:

The inhibitor test this month is down again! It was 0.95. That's a really good number! Ian has had a good month so far with no major problems. He has the usual bumps and bruises that come with being a busy boy.
Since the weather is getting nicer, we have been using his "biker" pads more. Our patio is brick and we have a large climber/slide/playhouse. Ian wears protective pads on his knees and elbows. I would like for him to wear the fingerless gloves to save on scraped hands, but he just pulls them off.
He is having a little language explosion and trying lots of new words. He's a joy and we're loving to watch him grow!

It's been a while since my last post, but that's a good thing. We went the whole month of Febuary without an Emergency!! Yeah!
Ian's dental appointment went well. The dentist just took a look to see if there were any problems emerging, and no there weren't. Yeah again!
He has had mild bruising and bumps this month, but that comes with being an active boy.
We went today for his March inhibitor test. Hopefully it will be down again from last month.

Yesterday morning the hemophilia treatment center called with Ian's inhibitor test results. His level was 3.65 BUs. That's down from 11 last month and a Very Good Report! Thanks for your continued prayers! We're off for his first dental appoitment today. We have to be extra carefull of gum disease and mouth bleeds. So another adventure begins. :)

We're back from the clinic. Ian had blood work done and it will take about a week to get the results. The test is to measure the anitbody count he has built up against his medicine. Two months ago it was .4 BUs and last month it was 11BUs. We are praying for a decrease.

This morning Ian was so proud after putting on his own helmet when he woke up. Here's a pic: